The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son

Ian Brown

A New York Times best 10 e-book of 2011

“[A]n intimate glimpse into the lifetime of a relations that cares round the clock for a disabled baby, that will get so on the subject of the affection and depression, and the advanced questions the lifetime of this type of baby raises...It is a gorgeous ebook, heartfelt and profound, hot and wise.”

                                     —Jane Bernstein, writer of Loving Rachel and Rachel on the planet

Ian Brown’s son Walker is one in all simply approximately three hundred humans around the world clinically determined with cardiofaciocutaneous (CFC) syndrome—an tremendous infrequent genetic mutation that leads to strange facial visual appeal, the lack to talk, and a compulsion to hit himself consistently. At age 13, he's mentally and developmentally among one and 3 years previous and may want consistent take care of the remainder of his lifestyles.

Brown travels the globe, assembly with genetic scientists and neurologists in addition to mom and dad, to resolve the questions Walker’s medical professionals can’t resolution. In his trip, he bargains an insightful critique of society’s assumptions in regards to the disabled, and he discovers a attached group of households residing with this sickness. As Brown steadily we could pass of his self-blame and desire for a medication, he learns to just accept the Walker he loves, simply as he's.

Honest, clever, and deeply relocating, The Boy within the Moon explores the price of a unmarried human lifestyles.

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